Happy Sweet 16 Dear Princess!!

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Tigress22304
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Okay so some of you know me from CM because of my daughter "Princess" who was born with a congenital brittle bone disease, and has developmental delays.

From time to time-many ask about her and how she's doing.
Princess is still the same sweet silly smiley Princess we all know and love!

Today marks her Sweet 16th Birthday.

Let's just say-she had a fantastic day with her parents and loved ones.

She's currently in her bed decompressing from her big day.

I can still remember when she was born :(
I'm not ready to admit she's nearly an adult.


Carry on.

{Kat}
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That's wonderful! Glad she had a really special day!
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KendallsMom
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Awwww! Happy birthday young lady!!!
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Anonymous 1

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Which type and gene?
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Tigress22304
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Anonymous 1 wrote: ↑Sun Feb 23, 2020 9:17 pmWhich type and gene?
Are you asking about the type of disease?
It's called pseuduarthrosis of the tibia
pseuda is Latin for false
arthrosis is Latin for joint.

It's when you break a bone and it creates a false joint.
The chances of her ever healing are very low.

We are facing possible amputation and prosthetics.

She was misdiagnosed with developmental delays on the autism spectrum
but was recently diagnosed with PradarWilli Syndrome.

It's got to do with a missing gene from the paternal parent.
I'm still learning about this syndrome and from what I understand-its a lifelong battle with obesity/food.

{Kat}
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Tigress22304
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KendallsMom wrote: ↑Sun Feb 23, 2020 9:07 pm Awwww! Happy birthday young lady!!!
Thank you-she certainly had a great birthday.

{Kat}
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Lilysma719
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Happy Birthday to her!
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MistressMonster
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Image


Image
The oranges of the island are like blazing fire
Amongst the emerald boughs
And the lemons are like the paleness of a lover
Who has spent the night crying.

My soul was ripped to shreds on 10/27/14
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Anonymous 2

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Tigress22304 wrote: ↑Sun Feb 23, 2020 9:01 pm Okay so some of you know me from CM because of my daughter "Princess" who was born with a congenital brittle bone disease, and has developmental delays.

From time to time-many ask about her and how she's doing.
Princess is still the same sweet silly smiley Princess we all know and love!

Today marks her Sweet 16th Birthday.

Let's just say-she had a fantastic day with her parents and loved ones.

She's currently in her bed decompressing from her big day.

I can still remember when she was born :(
I'm not ready to admit she's nearly an adult.


Carry on.
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Valentina327
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Awwwww! Happy birthday to her! Glad to hear she had a great day! ❤

Thank goodness she hasn't had to go the amputation route so far. I remember you talking about trying to get that leg to heal a couple of years ago. I can't imagine what that poor kid goes through and how hard it is for you to watch.

Thanx for the update, and hope she's stable going forward. 💐💐💐
Let's Go Brandon!
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